The Operation Grace White Foundation

Foundation Mission Statement

The mission of The Operation Grace White Foundation is to effectively fund Diffuse Intrinsic Pontine Glioma (DIPG) research, while inspiring awareness and supporting both the families and those afflicted by DIPG.

Foundation Purpose

1.  Increase awareness of DIPG

2.  Provide financial assistance to families affected by DIPG

3.  Fund DIPG research

What is DIPG?  

Diffuse Intrinsic Pontine Glioma (DIPG) is a type of brain tumor found in the pons, part of the brainstem on the lower back of the brain, near the top of the spinal cord.  DIPG primarily affects children, with most diagnoses occurring between 5 and 7 years of age.  It is a rare form of pediatric cancer, with only about 100-150 new diagnoses per year in the United States.  Due to lack of funding, there has been little progress in improving treatments for DIPG over the last few decades, therefore it maintains a 0% long-term survival rate, with 90% of those diagnosed dying within the first year.

Why was the Operation Grace White Foundation formed?  

On Sunday, November 9th, 2014 Grace White (age 6) fell while attending church with her mother, Amy and three siblings.  The fall was so severe that Grace was rushed to the local hospital for treatment.  During this hospital visit, a CAT scan was performed, and doctors discovered a tumor on Grace’s brain stem.  Her father Scott,  a LTC in the US Army Special Forces, was in Afghanistan when he received the news, and immediately headed home to his family.   Unsure of the specifics of Grace's tumor, Scott had no idea that he and Amy were about to begin the most difficult fight of their lives.  But they were not alone, and before Scott stepped foot on US soil, people were mobilizing to support Grace and his family.  Brothers, friends, and family were already at work, and many more were standing by to move mountains to ensure Grace was supported to the fullest.

Early in the fight, Amy envisioned a fundraising campaign entitled "Guns for Grace," the idea which eventually gave birth to The Operation Grace White Foundation.  Amy and Scott decided that beyond love, prayer, and support, the best way to help Grace was by declaring war on DIPG;  helping fund research, helping others affected, and doing everything in their power to ensure that no other family would have to fight a similar fight. 

As a Green Beret, Scott has lived by the motto "De Oppresso Liber," Free The Oppressed.  DIPG may be the worst form of oppression ever, as it attacks our children, steals their dreams, and robs them of the most cherished thing we!  We will fight DIPG as long as there is blood in our veins.  

"If cancer was a dude I'd shoot him in the face!"